Finally, Back in Boston   October 20th, 2011

I had a bit of anxiety this morning when my nurse wandered into my room to tell me the computer scheduling system was requesting a blood draw, which would have required getting punctured, since my catheter had been removed last night. Apparently it’s something that was scheduled automatically based on a past order by the doctor and didn’t get canceled. I declined as advised, and the blood work was marked as “patient refused”.

During rounds the doctors had a bit of a laugh about this, and I was wished a pleasant voyage home.

By 11:40am we were on the shuttle bus to Ronald Reagan National Airport, and by 12:45pm we were checked in and past security (in my wheelchair). I managed the meat, cheese, and mayo of a McDonald’s quarter-pounder, and the fried fish rectangle with cheese and tartare sauce of a Filet O’Fish. Both went down pretty well. Mayo makes a great lubricant, and tartare sauce is pretty good too. No buns because they are dry and I am still adhering to my low-carb lifestyle as best I can. I think broiled duck is on the menu at home for tomorrow, and perhaps the schweinshaxe (pork knee/knuckle) from the freezer (which my Dad had sent me for my birthday) a few days later.

We had arranged SUV transport to get us and our seven checked bags, and five carry-ons, back to our apartment in Boston, and things just barely fit, but by about 4:30pm, we were finally back in the apartment. I cried tears of relief, elation, and happiness – I couldn’t quite believe we were finally here again after 24 days.

There is no place like home (“home” = Boston, and “home home” = Bonaire – hope to get there next spring, finally). Home is also where the cat is, and she was happy to see us and cuddle with all of us.

I rested for a while, and there’s been lots of unpacking going on, so I haven’t gotten to my steam shower yet, but we have two new humidifiers running now, and the dryness here is far less already than in my room at the clinic. The shower is coming before bedtime for sure, though…

This will probably be the last of my daily posts on the blog, as all I will be doing for the foreseeable future is continuing to heal and regain my energy and exuberance (but not too quickly, since that could set me back). I may provide occasional updates over the coming weeks as I discover something new to share. I will also once again notifying people on my e-mail list of updates to the blog starting with this post.

Also, anyone wanting to visit us at the apartment is welcome to do so providing they are not sick or have not been significantly exposed to sick persons within a day of visiting. Drop us an e-mail to confirm timing first though!

The next milestone will be my scans and clinic appointment on November 9th and 10th, and I will certainly post after that. I’ve been told not to have high expectations for the first scan, so please don’t get your hopes up either. Scan 2 in December will be a lot more telling, and should start to show my progression towards NED!

Signing off – tired but happy.


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This entry was posted on Thursday, October 20th, 2011 at 19:15 and is filed under Health. You can follow any responses to this entry through the RSS 2.0 feed.Both comments and pings are currently closed.

24 Responses

October 20th, 2011 at 19:28
LaDonna Says:

woo hoo!!!!!!!!! :)

October 20th, 2011 at 19:30
Roy Says:

Willkommen zuhause Jake….. to NED!!

October 20th, 2011 at 19:34
Janis Says:

Welcome home, Jake.

October 20th, 2011 at 19:51
Kay Powers Says:

Welcome home Jake! I know that “home home” awaits you sooner than later. Your courage, strength and attitude ROCKS!

October 20th, 2011 at 20:23
Cynde Says:

Welcome home Jake! Sweet and restful dreams.


Hugs and Love,


October 20th, 2011 at 20:42
Mona Wirth Says:

Glad you are back in beautiful Boston. To NED and return to Bonaire! Hugs!

October 20th, 2011 at 21:11
Margreth Says:

Just hugs and a lot of love for the whole family. Keep the strength and the force.
Jan & Margreth

October 20th, 2011 at 21:31
Karen Says:

Big SMILES ;-) for you Jake!

October 20th, 2011 at 23:30
Harrie & Carmelita Says:

Hi Jake!

Congratulations, you managed to get this far. amazing!
Now the time is going to count, we hope Boston can give you as good feelings as Bonaire, I doubt, because winter is coming. Bonaire is waiting for you.

Wishing you good luck for the rest of the recovery. Stay fighting against those alien-cells.

And give your family our hugs, because they helped you to overcome all the fuss you went through.

Harrie & Carmelita
Dallas TX

October 21st, 2011 at 01:57
dad Says:

Schön willkommen und guten Apetit mit die Schweinhaxe und Sauerkraut! And lots of love to you, Linda, Yana and Bas. We’ll be in touch by phone after you settle down.

October 21st, 2011 at 05:06
Jarmila Richter Says:

Jake, glad to have you home. Hope you can soon take a walk on your own pair of feet instead of chair. Now I can finally have a good night sleep that kept deceiving me during your treatment. Enjoy life at homeand good food.
Love, mom.

October 21st, 2011 at 10:26
Liz Says:

So wonderful…isn’t it….being “home”!!!! I can emphathize… and we are hoping to be “home home” in spring too!!! Sent a package out for you today, hope it works! Hugs!

Ed and Liz

October 21st, 2011 at 11:57
Judy Workman Says:

Wonderful news, Jake! Rest and recuperate and enjoy the love :)

October 21st, 2011 at 12:27
Lea Nichols Says:

Congratulations. We agee that “home is where the the kitties are.”

Lea & Elsbeth

October 21st, 2011 at 20:42
Scott Says:

Good to hear Jake,

For a foodie like yourself, it’s hard to imagine you eating something from McDonald’s (lol)… but I do it too once in a while…
I’m sure the kitties missed you…and the bonding… looking forward to hear what’s in store for December…I passed by Lincoln Center today (to see a show called ‘THINK’) and thought about you :) Be well my friend…..


October 21st, 2011 at 21:11
Denise & Teddy Says:

To NED <3

October 21st, 2011 at 21:22
Cathy Says:

Thanks for allowing me to ride shotgun through your amazing three week journey – – – albeit from the comfort of my own bed, my own home, untethered to an iv, with my hair intact and a salivating mouth with functioning taste buds. You’ve made the most challenging medical journey seem surmountable – – – when tackled with a driving, positive attitude. Enjoy the wonderful normalcy of home!

October 23rd, 2011 at 19:05
Tracy Griffin Says:

Welcome home! We’re delighted to hear you’re progessing so well on your way TO NED!! Best wishes for a continued successful recovery. Enjoy – we’ll hopefully see you soon in Boston!
Tracy & Mike

October 24th, 2011 at 00:27
Erin Says:

Glad you are back in the comforts of your own home with that steam shower that you have been talking about! Rest well, eat well, go TIL!!

October 24th, 2011 at 12:41
Meryl Says:

Yeah..great news! Enjoy your Boston Home,your family and the kitties! I agree with Scott..suprised at the McDonalds meal..but after hospital food it must have been great!
West and Welaxation now!

Steve and Meryl

October 24th, 2011 at 19:19
Ann Phelan Says:

welcome home…be well…

October 27th, 2011 at 13:25
Karen Lear Says:

Keep the faith and keep pursuing NED!!! Be well – nothing like having family with you and congrats on being home!! Best wishes from all of us in TX!!

October 30th, 2011 at 16:16
nell Says:

Hoping recovery is going well and that you are regaining your energy.

November 3rd, 2011 at 12:54
Renata Says:

dear Jake, home home is waiting for you…