Melanoma Sucks   January 12th, 2012

Melanoma Sucks

This blot post will be more succinct that my prior posts.

I had a PET scan and a brain MRI yesterday, and a meeting with my oncologist today. I learned that my scans showed that the tumors on my liver and lungs and right adrenal gland have resumed growth (in contrast to what my scans in early November showed. as have my brain tumors – post radiation my further treatment will involve a drug approved last March by the FDA, known as Yervoy (ipililimumab) which is administered four times over a twelve week period at a cost of $132,000 (paid by insurance hopefully). So instead of moving back to Bonaire in April I would downsize apartments in Boston to be close to treatment at Mass General Hospital.

 

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This entry was posted on Thursday, January 12th, 2012 at 00:34 and is filed under Health. You can follow any responses to this entry through the RSS 2.0 feed.Both comments and pings are currently closed.

65 Responses

January 13th, 2012 at 16:26
Denise & Teddy Says:

My heart sank so very deep when I read this. My first reaction is that it is just not fair. Why are there are no ‘fairness’ laws in the life sciences? Jake, I refuse to give up my belief, or even let it falter for a moment, that you will beat this. I wish we all could take a share in bearing this weight for you. To NED, and prayers for you and all your family.
<3 hugs Denise

January 13th, 2012 at 16:56
Cathy Says:

You’ve been my inspiration so don’t give up. Following you closely into battle…..

January 13th, 2012 at 17:02
Kim Says:

Dammit, keep fighting this bastard.

January 14th, 2012 at 10:12
John L Says:

Still fighting this with you, Jake.

January 14th, 2012 at 19:58
Doug Colt Says:

Jake,

I have been reading your blog with incredible interest and respect over the last several months, and I am pulling for you everyday. For some very encouraging inspiration about the potential of Yervoy, take a look at a very young melanoma warrior’s saga: http://cantkickthischick.blogspot.com/ Best wishes to you, and know that you’ve got people around the world pulling for you!

January 15th, 2012 at 08:30
Denise & Teddy Says:

Doug, thank you for posting the link !

January 16th, 2012 at 00:20
Greta Says:

Jake,

I don’t know the right words to say. All I can think to say is, turn to God for strength and guidance and have faith in Him. We will continue to pray for you, Linda, the kids, and the rest of your family.

Joshua 1:7 “Be strong and very courageous.”

Big hugs and much love to you all!

Greta, Trent and Grant

January 16th, 2012 at 21:22
Nathalie Says:

Just catching up on your last post and am really sorry to hear of the setback. You’ve all been through so much already, but I know you will keep moving forward with conviction. Sending very positive healing thoughts your way.

Nathalie, George, and Chris

January 17th, 2012 at 16:29
Sue & Brian Says:

Jake – we still remember fondly the day we spent with you and Linda here in Warwickshire in the UK. Do you remember the visit to Warwick Castle and hearing Bryan Adams warm up for his show that night? And the pub lunch we enjoyed at a traditional pub in a village close to where me and Brian live? We also remember the hospitality you both showed us the following year when we returned to Bonaire – the meal at Cappricio’s was outstanding, and I still recall our dive on Small Wall and the web cam in Hato. It’s happy memories that keep me going – stay strong my friend, we’re thinking of you all. Sue & Brian xxx

January 17th, 2012 at 22:29
Andy Daniel Says:

Hi Jake, I had just on a whim looked you up online to see what you were up to so this is the first I’ve heard of the cancer. I do wish you a full recovery, you’re obviously a fighter, and I know you want to go back to Bonaire and dive soon so let that drive you. BTW I saw your picture pop up on CNN about a year ago when I clicked on an article on first class in-flight dining and there you were and I’m saying “Hey! I know that guy!” Small world… Be strong and stay happy. — Andy Daniel

January 18th, 2012 at 00:27
Sheri Says:

I just stumbled across your blog tonight while looking for information about side effects of Interferon because my husband will be starting his treatment soon. Thank you for sharing so much of your experience, especially the stuff people just don’t talk about. My husband’s melanoma seems very similar to yours, starting on his left thigh and progressing to his lymph nodes by the time he was diagnosed. He had his surgery Dec. 5th and treatment was derailed a bit due to infection, but his course of treatment seems very similar to yours, too (although I think he will have the “older” Interferon because I don’t think the newer version is approved in Canada yet.)

I feel less alone after reading through your blog. I find that when people ask me for updates about Jim, I use all these words that get blank stares, and here I’m seeing them in your story. I hate that you and so many others are going through this as well, but at the same time it helps to know that there are other people out there who really do understand.

I’m really sorry to hear that you’re having to go through so much more now. I agree completely that melanoma sucks. I wish you all the best for a full recovery.

January 21st, 2012 at 03:05
Ellvere Says:

Hi, stumbled on this blog by complete accident. Just wanted you to know I’m rooting for you, and wishing you only the best.

January 21st, 2012 at 18:23
Kate HIckson Says:

Shit. Be strong and know you are in my thoughts.